If these walls could talk

Stem Cell Transplant No. 3 – Update 2

Hello my healing team,

I hope this update finds you well!!

All things considered, so far, my Allo Stem Cell Transplant (SCT) has gone really well. Aside from a few complaints, i feel good and have come through relatively unscathed. However, given my immune system is quite new, it is proving to be fragile. On a Monday, just a few weeks ago, I found myself explaining to my specialist, the Nutty Professor, that ‘I was back’ and that my immune system was bulletproof. Then on the Tuesday I checked into hospital having caught Influenza A!! Fear not…. I was out after a few days. A month later and I found myself incarcerated within those hospital walls again, this time with Influenza B. I guess I am only bulletproof most of the time.  Even super heroes take a day off!!

What I find hardest about being locked away (albeit for my own good) is the solitary confinement with several days spent occupying a room where my best conversation is the echo of my own voice off the walls around me!!  Whilst I do like the sound of my own voice, I now know that you can have too much of a good thing!!  I guess I now have more motivation to stay infection free and out of hospital.

With time to contemplate whilst incarcerated I did start thinking about the stories you would hear if only the hospital walls could talk.  For one such story, late one night I was moved into a room with a really nice view out of the window. Whilst I felt fortunate to have the view, ever curious, I asked the nurse a naive question…. “How is it that a room becomes available so late at night??”.  The reply was short…. “A space becomes available late at night when the previous occupant doesn’t walk out” 😳😬.  I wish I hadn’t asked!!  I started to feel that hospital was quite a grim place to be, but on reflection, so much more occurs that is not really considered.

Hospitals are a dynamic place. A few things that occurred to me whilst incarcerated include;

  • there must be an express portal to heaven from hospital, and maybe one to hell also.
  • With all of the babies born, there has to be a Stork landing pad!
  • So many tissues would get used, many for sorrow, but lots to wipe away tears of joy also!!
  • More people walk out of hospital in a better condition than when they were wheeled in!!
  • A ridiculous amount of perfectly good food is unceremoniously damaged as it is cooked and served on a daily basis.
  • Careers are forged for so many awesome people who research, treat, care, test, diagnose, support, clean, cook, assist, transport etc.
  • A code grey announcement means someone is going troppo and security is needed ASAP.  This mainly happens in the Emergency Department.
  • A MET Call announcement is a medical emergency!!  You don’t want that call in your room while you are occupying it!!
  • Pain causes much anxiety and stress, but i have found that it can be improved significantly with morphine 😝
  • Nurses are meant to take your ‘Obs’ (blood pressure, temp and blood oxygen level) every three hours. This is a welcome interaction during the day, not so much in the middle of the night.
  • Nurses (and ambo’s) are the most underrated and wonderful people!!
  • In considering hospitals, whilst death does occur, they are so much more about life and living.

As I sit hear today, I have spent the day in hospital having just had a heap of testing done to work out how effective my Stem Cell Transplant has been. When the results roll in I will learn whether my bone marrow is more Daniel or more Geoff.  I will also learn whether the new stem cells have been effective in smashing my cancer to oblivion. So whilst waiting for my results, I feel that a hospital is a place of HOPE.  A place where sustained hope, a whole lot of hard work and a good dose of luck will propel me to my 80s.

Take care

Geoff

An ode to the Allo

Stem Cell Transplant No. 3 – Update 1

Hello my healing team,

I hope this update finds you well.

I received some promising results last week with my recent bone marrow biopsy showing that after chemo and one Stem Cell Transplant (SCT) my cancer has gone from 30% down to 0.2%.  This is really positive as it shows that the cancer is readily treatable and behaving as it should!!  Yee har!!  The challenge is that there is still cancer present which confirms the need for additional forms of treatment.

To really nail the cancer, last Thursday, I received an Allogeneic SCT.  This is where I receive cells from my brother Dan. His cells will effectively take over the immune function in my body. It does this by replacing my bone marrow with his in the hope that Dan’s bone marrow (and immunity) fight my cancer where my body cannot.  Riley suggests I will be a mutant Uncle Dan!!  Although Dan’s cells have only been in for a week I am a little worried. I can already feel the mutation occurring with my hair going curly and my brain function slowing 😎.  I would love to think that I was morphing into an elite version of Dan, but I don’t think I could ever be as funny as he is!!  Actually, Dan giving me his cells is a selfless act that I am truly thankful for!!  He may not be the messiah, but he is a very good boy (did you see what I did there??  His funny is coming through already!!).

The exciting aspect of this SCT is that, based on current technologies, this is my closest chance at achieving long term remission.  It buys me time, and let’s face it, the thing that we yearn for most is time.  With a massive possible upside comes massive potential down sides.  As this is similar to an organ transplant, there can be rejection issues. These chronic side effects, which don’t normally materialise for several months into the procedure range from rashes and discomfort, through to major organ complications and possible death 💀.  Given I am already committed to living into my 80s, I’ve decided that the latter is not an option. Wish me luck with that one hey!!

It feels like it has been a huge process getting to where I am now, having just had the SCT. It started way back when I was first diagnosed in March 2014, when I was told that the Allo SCT was likely the best option for me.  To prepare mentally there have been many hoops that I have had to navigate, and physically the SCT has given me a kick up the arse for the second time in as many months.

The transplant process has been ongoing for the last few weeks and for once, I have not been the only one self injecting drugs.  Dan had to do some injections too!!  Payback for him being a cheeky snot when we were kids!! I had a week of chemotherapy, topped off with Total Body Irradiation.  The irradiation is like something out of the dark ages where they put you in a room resembling a concrete bomb shelter, place you on a bed against a wall, then blast you for 30 minutes with a machine that looks like one of the death ray creatures from War of the Worlds!!  As I lay there, I felt fully reassured as they put a big block of lead next to my head so that the treatment wouldn’t ‘fully’ screw me up. Lucky me!!  Next was receiving Dan’s cells. Dan did a marvelous job with his collection giving up 5.7M cells for me. I only needed 2M!!  He always was a high achiever.  Apparently, Dan’s cells ‘looked’ perfect, resembling guava juice, so in they went.

Over the past week, I have felt pretty crappy with nausea and severe fatigue returning with vigor.  Thankfully I am starting to feel better now, but admit that cautiously as my white blood cells are now dropping me into a neutropenic state (as expected). This means that I will rug up for another week at home as my immune system will be dangerously low. I just can’t risk getting another infection. My infection last month hurt too much!!

With everything that has occurred over the past few months, I feel cautiously optimistic!!  Whilst I am in the thick of this very dense cancer forest, I feel that I can see the light on the other side of the darkness, and the light is in the form of a beach somewhere; a beach that has warm golden sands and silvery water, and is drenched in warm sunlight that will sustain me for the next 30-40 years!!  See the photo attached :). Come visit!!

Take care

Geoff

17-06-28 Photo 1 Photo 3 Photo 4