Post Transplant Joy

Stem Cell Transplant No 2

Hello my healing team,

I hope this update finds you well.

The last week has been quite eventful. As you know, I have been feeling crapola and have lost my appreciation for zopper doopers. Regardless, with the support of my beautiful wife, I have been existing well enough out of hospital. On Saturday morning I even plucked up the energy to go for a walk in Fawlkner Park to watch younger people playing footy. It was nice.

I checked into hospital on Saturday for some blood tests. At that stage, the chemo had done its job as my blood counts had all hit zero meaning that I effectively had no immune system. So after being in hospital for half an hour, I started shaking uncontrollably,I found myself in growing amounts of pain and deteriorating quickly. I was put in a bed and soon become delirious. Every time I opened my eyes, there were more people over me, pumping in all sorts of drugs and connecting me up to different machines. I woke up three hours later to learn I had scored an infection, which had started doing nasty things to me. Effectively, it properly nailed me and it has taken until today to get back on my feet.

I woke up yesterday to a bit of a surprise. After pulling my covers back, it looked like a tabby cat had lost all of its hair in my bed (not that I have ever seen that happen)!! At the same time, my body was looking a lot more ‘boyish’ . So I took the big step and shaved my head as I got sick of it all falling out everywhere. So now I need a beanie to cover my big cold ears.

Today I checked out of hospital. Unfortunately, all in my family have been unwell, and wanting to avoid another infection, I am staying with friends. Being amazingly accommodating my buddy Kristy has given me a well appointed room, and was even thoughtful enough to provide a ‘guest’ bottle of shampoo, which I thought was a bit of a low blow given my new circumstance 😂. So it is time to keep my head down and focus on getting better. Onwards and Upwards!!

A few nights ago, I walked in the shoes of that person who I have never been before. I was suffering massively from whole body pain. I felt nauseated and ready to release from either end. I was experiencing hot and cold fevers and the shakes. I struggled to lift my head up off the pillow to take a drink of water to soothe my dry mouth and cracked lips. I felt tired, vulnerable and sad. As I endured this, my saving grace was in the knowledge that I knew this stage will pass. I can be strong and show positivity because there is light at the end of the tunnel and I will get better. However, I let my mind wonder a little and sit in the emotion where this stage wasn’t going to pass, a reality for many cancer patients, and a possible future eventuality for me. I wanted to experience that feeling of helplessness so I could understand that scenario. I admit to being a little scared and very confronted. I may even have let a little tear go. It’s not a place I want to be again any time soon and luckily for me, I know I won’t be. They say it is a good practice to occasionally walk in the shoes of others. They were very uncomfortable shoes!!

For many people living with F@$ken cancer, much of the pain and discomfort is not directly caused by the cancer, but is a result of the chemotherapy drugs administered. I now realize why people often forgo chemotherapy, and roll the dice of life.

Take care

Geoff

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Transplant Time

Stem Cell Transplant No 2.

Hello my healing team,

I hope this update finds you well.

Last week I got four bags of Stem Cells put back into me. I would love to say I am flying along, but I will stay honest. I have not been well. I am feeling pretty shitty actually. There are a lot of symptoms that could have materialised, and most of them have. Nausea, diarrhea and severe fatigue are the ones that have me at my worst. The fatigue has me sleeping the whole day and too spent to move, and the other two have me breaking the land speed record and yelling “for god sake…. get out of my way”!! I wish I could paint a prettier picture of it, but I cannot. A kind friend recently asked whether there is anything that they could do for me. My response is that nothing can be done. I just have to suck it up and work through it. Wish me luck.

The last week has been interesting in that the kids are absolutely aware of my predicament, or rather ‘our’ predicament. Things just aren’t the same at home. For starters, I am resting all day which never happens, we have had lots of people over to help, and we have our fab friends dropping off food. Whilst this is humbly appreciated, they are red flags to the kids that something at home is wrong. The kids coping strategies have been on show with Georgia being quiet, more reserved and teary. Riley has been more considered, short and grumpy at times. All pretty much expected, but sad to see our kids having to experience these things. We realize that when times are challenged, the best way to cheer up the kids is with nice food. We gave them Zooper Doopers.

Take care

Geoff

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Stem Cell Transplant No. 2 – Transplant Preparation

Hello my healing team,

I hope this update finds you well!!

Firstly, thanks for all of the wonderful support that you have shown to Sarah and I over the past few days! All of your messages have put a smile on my (somewhat bald) dial!!

All kicked off yesterday with the insertion of a Hickman line. This is a couple of tubes that get installed into my chest and connect to my jugular vein for quick blood access. The installation is a surgical procedure that is meant to take an hour. However, I got Dr Quick Fingers who was super fast and knocked it over in 15 minutes. I think he had another nine holes of golf that he had to get to. It is normal for the patient to be comfortably sedated during the procedure, but Dr Quick Fingers forgot to administer until half way through so it didn’t really kick in until I got back to the recovery ward. It did make recovery more interesting, especially the process of going to the toilet!! I’ve never had to concentrate so hard 🙄.

For me, the Hickman line has its pro’s and con’s. Up side is that there will be no more needle jabs for the next 3-4 months. Down side is that I have these horrible tubes hanging out of my chest. I have to be careful not to get them too wet so no swimming. I must not damage them or pull on them so no wrestling with the kids (or Sarah 😻) and it is infuriatingly itchy as the holes in my chest heal. On top of that, I need to go into the hospital weekly to get the dressing changed so I am tied to this crappy place. Bloody annoying. I have watched a few episodes of ER in my time so I felt quite comfortable to redo the dressings weekly myself but ‘apparently’ given the device goes straight to my heart, they don’t want to risk infection!! Blah.

High dose chemo today (Wednesday).

So they start by sticking in anti nausea, anti bacteria, anti viral, anti fun, a dose of pain management and loads of saline. Then they give me some steroids to pep me up and keep me awake. I was also given a diuretic so that I can quickly pass the toxic drugs out of my system, then drugs to stablise my kidneys to protect them from the harsh effects of the chemo and the dying cells in my body. That’s the first 10 minutes done.

Next they introduce the Melphelan which is high dose chemo. Melphelan was developed in 1980. They first designed it to sterilize dogs and cats. It also got picked up by PinoClean as a hospital grade toilet cleaner. Winning!! (Please know that I rarely let truth get in the way of an entertaining story). So they run the Melphelan through me for roughly one hour, and as it passes through me, it indiscriminately kills all the fast replicating cells in my body including hair follicles, cells in my gastrointestinal tract, my mouth lining, my bone marrow and hopefully the cancer. Some of the side effects include ulcer damaged mouth and “back passage”. Recent medical advances has found that if the patient sucks ice, it helps with the mouth ulcers as the cold stops blood (and Melphelan) flow to the mouth lining. I asked the nurses what I could do to protect my back passage and they gave me a Zooper Dooper 😳.

So I have been asked many times over the past week how I feel. When I pull away the facade, I just feel pissed off!! I won’t explain why. It’s pretty self explanatory. Sarah says she is pissed off too 😡!!

As you reflect on this update, know that I am sitting in the day oncology ward at Alfred hospital (one of 20-ish hospitals) that treats up to 20 patients at any one time. The seats are full from 9am to 5pm with patients typically staying for an hour…… that’s a lot of Zooper Doopers!!

Have a great day.

Take care.

Geoff

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